Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
[hidden by author request]
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
Things Remembered
When I was in kindergarten, a girl brought a doll to class. It was so pretty that even the boys liked it. Everyone played with it but I was the one who broke it. Go »Danger Will Robinson!
We've probably all seen examples of stupid warning labels but there's a few here I had never seen before. Also, the menu on the right side of this page has some interesting features. And remember, don't eat the iPod shuffle! Go »As The Firm Sang - I'm Radioactive
Brenda is under quarantine now because of an ablation procedure that makes her radioactive. Some stray thyroid tissue is apparently on her oncologist's hit list and he won't be denied. I'm sleeping on the couch for the next three nights and I'm doing the Daddy thing solo for the next three days. Go »All Aboard The Idiot Train
I swear that lately, I feel like the proverbial snowball that inexorably turns into an avalanche. Yesterday, I was unloading the van of the last of the grass needed to complete the front yard landscaping. Only 170 square feet so it wouldn't take long. Go »Christmas Post #22: Full Metal Rudolph
One of the first impressions I learned as a kid was the Charlie-in-the-box from the Island of Misfit Toys. "Nobody wants a Charlie-in-the-box." Yeah, that really cracked up all the girls in third grade. Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.