Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
[hidden by author request]
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
Yes, I Would Like A Second Helping
Blasts from the past. Really bad album covers. Lame creatures from Star Trek. Go »Definitely A Hatchet Murderer
My car broke down at an intersection less than a mile from my work. I have roadside assistance but I couldn't read the fine print on the handy card they provided. The fine print was where the number was. Go »End Of The Year Post 2007
Some of the most interesting Year In Perspective lists I found. Top Ten News Stories. Top 5 Fails. Go »Dumb Criminals And Other Court Type Stuff
Small potpourri of MENSA reject criminals, frivolous lawsuits and just dumb laws. Cupcake Burglar; Cheeseburger Lawsuit; Drunken Sock Eater; Saggy Trouser Law; and Goofy Streaker. The most shocking story to me is this last one in which a victimized Kirsten Dunst had her room burgled and items stolen including a $13,000 handbag. Go »I'm a Doctor, Not a Kitchen Appliance!
My toaster has a timer on it that let's you know when it's finished. It seems a little silly to add a timer beeping that's a redundant addition to the toast loudly popping up from the machine that means the same thing. So now, because the timer emits a sound eerily similar to an EKG indicating flatline, every time it goes off I'll say to Brenda, "He's bread, Jim." Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.