Respen-A Or Not Respen-A? | Tragic Comedy

We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.

Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.

But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.

The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.

Three Replies to Respen-A Or Not Respen-A?

Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.

Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)

Jackie Mason | April 23, 2010
[hidden by author request]

Web Junkie

Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »

Action Hero?

I remember back in the early '70's, my brother and I got new G.I. Joes for Christmas. They were pretty cool with the kung fu grip and "real-life hair and beard". Go »

Have a Nice Day!

I'd like to get a part-time job now that I'm retired but can't seem to find any long-lasting energy (Damn MS!). Brenda suggested being a Wal-Mart greeter. "That doesn't take a lot of energy," she remarked. Go »

I Tap My Magic Wand

This is just the coolest fountain. It may appear photoshopped but this actually has a pipe hidden within the water flow that supplies the water. I really have hopes that when I buy "Barbie's Dream House" (the euphemism my daughter and I use for our future house), a smaller version of this will be in my library. Go »

What Goes Up...

Lauren and I went on that rock climbing event that she won during daddy/daughter bingo night. I corresponded with her principal, a nice guy who does this often. I asked him what I needed to bring besides bandages and his only recommendation was loose clothing. Go »

Christmas Post #17: Gadgets &Stuff

Cool collection of unusual stuff that would make memorable gifts. I swear I'd love to get my wife that toaster but I've heard too many horror stories of what happens to husbands who purchase appliances for their wives for Christmas. Think I'll wait for Valentine's Day. Go »