Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
[hidden by author request]
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
It's Not Just Rhetoric
A personal pet peeve of mine is the use of the phrase, "That's just rhetoric." As if the speech being referred to is meaningless and/or uninspiring. The word rhetoric is to be used to define speech designed to persuade. Go »Public Service Announcement
For those of you who will be pulled over by the police and asked the inevitable question, "Because I'm smokin' hot" is not the correct answer to "Do you know why I pulled you over?" Live and learn. Go »Got Dem Sunday Shopping UOAS Blues
Weekly shopping or as it has become, my weekly stroll through Satan's marketplace. I consciously avoided UOAS's line and since there were only two lines, chose the one next door. Let's call this one Slightly Less Ugly On A Stick. Go »For Your Consideration...
So many actors are on their best behaviour come Oscar time because they don't want anything to interfere with their chances to win in this rare opportunity. The rarest of opportunities occurs this year for Mickey Rourke who is not exactly on a first name basis with Oscar nominations. And may never be there again. Go »Renaissance: Everything Old Is New Again
The Maryland Renaissance Festival is an annual event that takes place on eight consecutive weekends each year at an outdoor site in Crownsville, MD. It usually starts right around when school does so Brenda and I have been distracted away from going for several years. We promised the girls we would absolutely go this year for their mini-vacation. Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.