Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
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Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
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I dreamt that I had died and gone to Heaven. Brenda lived a few more years and then she passed. When she got to Heaven, she saw me and ran to me with open arms saying how much she had missed me. Go »(Insert Movie Title)...in 30 seconds Re-Enacted By Bunnies
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I got a phone call today from my Service Coordinator of Prince George's County officially welcoming me and my daughter, Olivia, into the Autism Waiver program - a state funded program intended for families with an autistic child offering funds for state approved services such as Aqua therapy, Occupational community trips, Speech therapy and even respite for Brenda and I. This has been a nine year wait since getting a diagnosis for Olivia at age 2. The waiting list is horrific. Go »We Were That Close
Brenda and I looked at a house a few days ago and were very charmed by it. It was a ranch style home with four bedrooms, a large fenced yard and was selling at a reasonable price. Brenda was a little unsure of the size of the bedrooms but agreed to go back and specifically measure them with a tape measure and if they met her minimum standards, she would agree to make an offer for the house. Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.