Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
[hidden by author request]
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
Duncan Hunter, Bottom-dweller.
Comedy Central created a side-by-side comparison with presidential candidates paired with their superhero counterpart. Duncan Hunter, bottom-dweller. God, that's funny. Go »Yes, I Would Like A Second Helping
Blasts from the past. Really bad album covers. Lame creatures from Star Trek. Go »If I Had A Hammer...
I once heard Leonard Nimoy singing this old Pete Seeger tune and it almost gave me epileptic convulsions. It has nothing to do with this link of an amazing artist who works with Hammer and Nails. It's just that whenever I see a hammer or box of nails or even a picture of Karen Carpenter - that's the song that leaps into my head. Go »Good Morning, Let's See Who's Dead
A website devoted to tracking who's alive and who's not. Most entries are for the recently passed but also some entries to silence rumors. Also, a neat feature to read obituaries and find photographs of actual grave locations. Go »Barbie Gets Implants
In the early ‘90’s, I heard a stand-up routine by Cathy Ladman in which she was buying a Barbie doll as a birthday present for her niece. She’s looking at the doll displays and her eye catches a “Gift-Giving Ken”. She says, I really don’t think this is gonna prepare her for adult relationships. Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.