My mother has Alzheimer's and dementia. She'll be 80 in a few months. For the last decade or so, her partner Andy has been taking care of her, but he's 85 himself and not able to continue. Since last summer, I've been taking on more and more of the daily responsibilities of taking care of my mother's needs, financially and legally and medically. And holy hell is it time-consuming. I had heard that it gets like this but I really had no idea.

I spend about 80-90% of my free time taking care of my mother. I'll frequently stay up until 12-2am answering emails from Andy, sending requests to her caregivers at her assisted living facility, scheduling appointments and companions for her, filling out forms and legal paperwork, placing orders for various things that she needs, and blocking out time in my work calendar for time that I'll have to take off to be in the room with her various doctors when she sees them. I'm on a first-name basis with her caregivers and lawyers. I keep a constantly-changing list of her medications and specialist doctors. I have come to dread checking my inbox or glancing at my buzzing phone because it's going to be more demands on my time and attention.

With Kelly dealing with her own recent medical crisis (3 surgeries and 15 days in the hospital so far), and a stressful work project that has me working overtime to meet difficult deadlines, I have been stretched really damn thin. It's gotten to a point that I have never reached before in my life, where I'm just failing outright to get things done. I pass out at midnight, unable to finish tasks that need to happen that night, because I just can't do any more. I reached a point this past week where I just surrendered and said I'm going to get done whatever I can and not stress any more if some things fall by the wayside because I'm human and have limits.

I have no idea how parents do it. I couldn't imagine trying to juggle all of this with kids on top of it. And my mother doesn't even live with me; being physically and immediately responsible for her needs would be even harder.

I'm saying all of this to illustrate why I've been absent from Funeratic for nine months and counting. I have so far been able to keep up with making goos, and I'll answer messages and concert challenges when they come up, but I really haven't had anywhere near the amount of time that I'd like to have to work on this website and interact with people here and add new content and do any of the numerous projects that I still think about. Funeratic is still big in my heart, but it gets a tiny sliver of my time because that's all that I have been able to give lately. Like I said, I'm trying to set more realistic limits starting this past week (and I'm trying to push more of my mother's care onto her very expensive professional caregivers where it belongs), so maybe I'll be able to make time for the site, but I certainly can't promise that.

Thanks for continuing to stick around. I'm not done with Funeratic.


Logical Operator

The creator of Funeratic, Scott Hardie, blogs about running this site, losing weight, and other passions including his wife Kelly, his friends, movies, gaming, and Florida. Read more »

Crash

There are some dangerous intersections in our neighborhood, where trucks come barreling through after the light turns red. This morning, Kelly and I were waiting at the light when she dropped her sunglasses. "Fuck beans," she muttered, unbuckling her seat belt and leaning forward just as the light turned green. Go »

Wests Take Southwest to Southeast

As Steve West mentioned, he and Brenda recently visited Sarasota for a week of fun. In advance, we rented an AirBNB (cat allergies prevented staying at my place) and kicked around some ideas for what to do, but we were concerned about unpredictable fatigue and other medical complications and knew that we had to take it one day at a time. The trip had a bumpy start, with Kelly taken by ambulance to the ER the night before (she recovered quickly) and a difficult Southwest flight and Uber pickup for the Wests, but that all quickly felt like it was behind us as soon as the fun began. Go »

Back in Black

Is it already the end of December? It feels like it's been three days since Thanksgiving. Between late nights at work, holiday parties, and shopping for the big day, this month has been a blur. Go »

Downtown Disney

My mom's birthday present to me was a mini-vacation in Orlando, since we're too broke to take a real vacation. We weighed the options for a few days, theme parks vs small local attractions, and settled on something we had wanted to do for years, DisneyQuest and some of the Downtown Disney complex around it. I knew DisneyQuest had a lot of motion-simulator and interactive video games, but I didn't realize that the entire 5-story building is just one giant video arcade. Go »

Rambling Phone Post

Does it make sense for me to keep my phone? Work has provided me with a cell phone. I broke my home phone last weekend, and I could buy another one at Target for ten bucks, but I wonder if I should finally kick the $45 monthly bill and stick to either the cell phone or something like Skype (for which I'd have to buy a mic). Go »

Throw Out Your Caller ID

I'm all for scientific research into the paranormal, since it will benefit humankind whether the results are affirmative or negative – but apparently it's awfully hard to keep such research scientific. For instance, I never fail to be amused by ghost hunters who claim to have proven a haunting because electromagnetic readings are higher in the area, a phenomenon that has no demonstrated correlation with hauntings. And let's not even get into the ones who claim to have proven a haunting because a "psychic" said they sensed ghosts nearby. Go »