Strike Two
by Steve West on November 5, 2010
Brenda and I attended a school meeting today to discuss the battery of assessments needed to properly develop an education plan for Olivia. After hearing the assessments from the primary teacher, occupational therapist, speech therapist and physical therapist, we got to the part that was a stunner to say the least - the school psychologist. After giving her report which mimicked the other reports to a large degree, she informed us that she felt it was time to officially put it in the record that Olivia was intellectually disabled. Prior to October of this year the term was mentally retarded.
This is something that Brenda and I have discussed amongst ourselves but it has never been part of an official report. The evidence was fairly apparent. She's two standard deviations from her same age peers academically, adaptively and cognitively. The education gap she faces is expected only to widen. I asked several questions and tried to respond to questions asked of me while Brenda wept quietly beside me. My primary concern was not in avoiding such a stigmatizing label, but to understand the implications of the term on an educational level. Her education program will remain unchanged. Her primary diagnosis is autism. This will only be more descriptive information to Olivia's future educators in Middle and High School to assist them in meeting her needs.
I withheld any emotion at the time because Olivia needed a sober listener to the facts. I cried later when thinking of this little child, who already has a huge strike against her being confronted with another burden. What can I do more? How can I help her to be an independent adult when I can't be there for her any longer? What am I not doing now? The one thing that won't change is how I feel for my baby. I am truly thankful for the heart I've been given to know that my feelings of love and obligation are unchanged since the day she was born. I love you, sweetheart.
One Reply to Strike Two
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
Gettin' The Animals Out Of My Blog Folder
Time to clear out the animal clutter from my blog folder. Want to make your dog look really tough like the dogs from medieval times? Try some doggie armor. Go »Autism Walk 2010
We go on this walk annually and have seen it grow tremendously over the last seven years. What began for us as a walk to support a local fundraising group has evolved into a national campaign spearheaded by the Autism Speaks organization. It hasn't all been good but the majority of changes have been welcome. Go »Emptying My Blog Folder
Removing links like a giant hair clog. Odd little internet games. Big thumbnail list of T-shirts - a few are pretty funny. Go »Lisztomania
Interesting lists and compilations. 50 funniest movie scenes ever. 50 greatest commmercial parodies. Go »Special Olympics
"Special Olympics athletes are spokespersons for freedom itself - they ask for the freedom to live, the freedom to belong, the freedom to contribute, the freedom to have a chance. And, of all the values that unite and inspire us to seek a better world, no value holds a higher place than the value of freedom." - Eunice Kennedy Shriver Olivia's participation in today's Special Olympics was incredibly uplifting for me and Brenda. Go »
Scott Hardie | November 6, 2010
Your family has been in my thoughts all day, Steve. Olivia did win something in the genetic raffle and that's having you and Brenda as wonderful parents, and I don't just mean that as some flattering platitude. You're both determined to see her get the very best support that she can, which is what this diagnosis will help to achieve. I wish the best for her and for all four of you.