Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
[hidden by author request]
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
Do Pumpkins Exist Outside Of These Fall Holidays?
They should. I love the taste of homemade pumpkin pie. I almost didn't marry Brenda when she told me she couldn't make one but I thankfully reconsidered. Go »Killer Home Decor (Literally)
From chalk outline welcome doormats to dead horse head pillows à la The Godfather (with protruding tongue, no less), this website features decorations to give your home that perfect serial killer feel. I especially like the pooling blood carpet. Go »Never Volunteer, Dummy
Ever since seeing Anthony Hopkins in Magic, ventriloquists and their evil dummies have given me the creeps. This guy does as well but I laughed nonetheless. I think I could sit through his entire act but could never get past the queasiness and actually volunteer like this guy did. Go »As The Firm Sang - I'm Radioactive
Brenda is under quarantine now because of an ablation procedure that makes her radioactive. Some stray thyroid tissue is apparently on her oncologist's hit list and he won't be denied. I'm sleeping on the couch for the next three nights and I'm doing the Daddy thing solo for the next three days. Go »Hair's The Thing
I just got back from getting a haircut. I sat in the chair at a local salon and reminisced about my childhood and accompanying my father to his weekly hair trimmings. We went to a pretty old-fashioned Mayberry barbershop in suburban DC that was the Italian version of Floyd's. Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.