Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
[hidden by author request]
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
It's That Time Of Year
Snow time. I don't live in Fargo so I defer to Denise and others for even more horrible snow stories. But the forecast yesterday was for anywhere between 6 and 32 inches of snow depending on a whole bunch of meteorological variables and other mysteries. Go »You Make Life Worth Living
Recently, I attended a wedding for some close friends of mine. The reception featured a DJ who doubled as emcee announcing what was happening and what would happen next. After doing the stupid chicken dance and the hokey pokey, he tried to create a “feel good” moment for the newlyweds. Go »Barbie Gets Implants
In the early ‘90’s, I heard a stand-up routine by Cathy Ladman in which she was buying a Barbie doll as a birthday present for her niece. She’s looking at the doll displays and her eye catches a “Gift-Giving Ken”. She says, I really don’t think this is gonna prepare her for adult relationships. Go »So, I Got My Concealed Gun Permit, Yesterday...
...and went over to my local Bass Pro Shop to get a small 9mm pistol for home protection. When I was ready to pay for the gun and bullets, the cashier said, "Strip down, facing me." Go »Christmas Post #1: Yeah, I Said Christmas
It's way before Thanksgiving, I know. But I'm doing my part to save those last minute shoppers from themselves. Allowing time for the infamous shipping & handling, now is the time to begin the annual spending free-for-all. Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.