Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
[hidden by author request]
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
Post Florida is Literally Murder
Brenda and I recently returned from a wonderful week spent in Sarasota with Scott and Kelly. Lauren and her husband, Jon, were able to fly down from ND to care for Olivia while we were travelling. The trip started as a mixed bag of positives and negatives, as the people in the row in front of us spoke incessantly and at an annoyingly loud volume but the young lady who shared our row was delightful. Go »7-Eleven's Legacy
Aside from selling lottery tickets, 7-Eleven stores are recognizable by two products; Slurpees and Big Gulps. All, I mean all, of their food products should have E. Coli warnings on them and an ingredients list that says "some kind of meat, we think". Go »The Texas Chili Cook-Off
Recently, at a Bowie Baysox baseball game, I was honored to be selected as a judge at a Texas chili cook-off. The original person called in sick at the last minute, and I happened to be standing there at the judge’s table, asking for directions to the Coors Light truck, when the call came in. I was assured by the other two judges (Native Texans, probably) that the chili wouldn’t be all that spicy; and besides, they told me I could have free beer during the tasting, so I accepted and became Judge #3. Go »Halloween Post #8: Geek-O'Lanterns
Happy Halloween! Celebrate this absurdly lovable holiday with a time-consuming habit of making a jack-o-lantern. Despite the inherent silliness of carving a gourd as an act of celebration, these pumpkins are very impressive. Go »Vanity Plates
Although a few are a little crude, many of these vanity plates are clever and funny. I've never had a desire to acquire one myself but I do admire a good one when I see it on the road. My personal favorite is "PLAN AHE". Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.