Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
[hidden by author request]
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
Early Valentine Gift
Brenda woke up Saturday morning and said, "I just dreamed that you gave me a beautiful necklace for Valentine's Day. What do you think it means?" I told her, "You'll know tonight." Go »When You Care Enough to Hit Send
E-cards of an unusual and hilarious nature. I haven't tried one so I don't know if they work - it appears that they do. But they're extremely funny nonetheless. Go »Tattooing's Last Frontier
Aside from internal organs, there doesn't seem to have been any body part un-tattooed except for the eyeball. Until now. Colored contact lenses weren't good enough for this guy and I really expect him to be the first guy with a spleen tattoo. Go »The Cause And The Cure For The Munchies
So, you're an executive pothead sitting around the confernce room table with all the stoner VP's. The discussion centers on marketing a product that, while overtly illegal, has such an upside in monopolizing the market and growth potential. And whose turn is it to change the bong water, anyway? Go »Let Loose The Pigeons!
I got a phone call today from my Service Coordinator of Prince George's County officially welcoming me and my daughter, Olivia, into the Autism Waiver program - a state funded program intended for families with an autistic child offering funds for state approved services such as Aqua therapy, Occupational community trips, Speech therapy and even respite for Brenda and I. This has been a nine year wait since getting a diagnosis for Olivia at age 2. The waiting list is horrific. Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.