Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
[hidden by author request]
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
Givin' It Up To The Man
There seems to be several different meanings to that phrase, these days especially. Meaning 1) A teenage girl in Germany sold her virginity online to an Italian businessman for $18000. She had hoped to raise $100K for schooling, I think. Go »Ahnuld's Dog, Heinrich
"Heel, Heinrich!", commands the Governator. "Kiss my grossly over-developed ass," snarls Heinrich in return. Go »Special Olympics
"Special Olympics athletes are spokespersons for freedom itself - they ask for the freedom to live, the freedom to belong, the freedom to contribute, the freedom to have a chance. And, of all the values that unite and inspire us to seek a better world, no value holds a higher place than the value of freedom." - Eunice Kennedy Shriver Olivia's participation in today's Special Olympics was incredibly uplifting for me and Brenda. Go »Special Olympics
Today, Brenda and I had our annual meeting for Olivia's Individual Education Plan (IEP). The whole team meets which is comprised by at least 6 various educators and the parents. Some teachers just pop in for just a few minutes. Go »Some Anniversaries Are More Memorable Than Others
Today is the ninth anniversary of my wedding to my child bride, Brenda. So far so good. Had to call and schedule the plumber because there is water leaking from behind the wall in the bathroom. Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.