Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
[hidden by author request]
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
The Magic Kingdom Is, Well...Magic
We just flew in from Orlando from a week's stay in Kissimmee, Florida. We had an incredible vacation that included the Magic Kingdom, Aquatica waterpark, a resort stay at Oak Plantation, Hollywood Studios, and Universal Citywalk including the Hard Rock Cafe, Bubba Gump Shrimp Co. and the Blue Man Group show. Go »Strike Two
Brenda and I attended a school meeting today to discuss the battery of assessments needed to properly develop an education plan for Olivia. After hearing the assessments from the primary teacher, occupational therapist, speech therapist and physical therapist, we got to the part that was a stunner to say the least - the school psychologist. After giving her report which mimicked the other reports to a large degree, she informed us that she felt it was time to officially put it in the record that Olivia was intellectually disabled. Go »It's Not My Fault
Recent conversation with Brenda: Brenda: Steven! me:Yes, queen of my soul. Brenda: The bathroom sink is full of whiskers. Go »Burning Microwave Popcorn
This guy puts all kinds of different crap in the microwave and films the results. My favorite is the eggs. Go »Christmas Post # 18: It's The Force, Not An Empty Box
My brother is a collector of sorts. He has various bits of Civil War memorabilia, Washington Redskins gear, and science fiction flotsam from Star Trek and Star Wars. If these toys actually existed, he'd be one of the first in line. Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.