Respen-A Or Not Respen-A?
by Steve West on April 19, 2010
We got a prescription for the aforementioned drug and have been administering it to Olivia for one month now. The results are pretty mixed. There have been no side effects apart from some minor appetite issues but also not a whole lot of observable benefits. Not a lot but a significant few. Olivia seems to be slightly more aware of her world than before. She is somewhat more focused when performing tasks and turns her head to identify noises as opposed to ignoring them as in the past. Her world is now more than just a three foot sphere of influence. We got an additional two month supply as it was recommended that a trial last for a minimum of two months.
Her vocabulary has expanded by a few more words and she apparently has mastered a few school tasks by rote memory. She memorizes a lot of things that I previously would not have expected and has learned a few more tasks previously unachieved. She types using a standard keyboard but only to copy text not generating original thoughts.
But, and this is the rub, how much of this is attributable to the medication and how much is just the natural maturation process? The progress is enough to continue the experiment. At least for another few months.
The cost is manageable, although the hundreds we have paid are yet to be reimbursed by our insurance and the supplements she has to have are cumbersome to an already finicky eater. But she physically appears to have nothing adverse happening. Brenda and I are maintaining enough enthusiasm to continue the efforts required. We'll continue to observe and do our best to make unemotional judgements.
Three Replies to Respen-A Or Not Respen-A?
Scott Hardie | April 20, 2010
Agreed. This is good news! If the drug did help, could Olivia lose some of the gains that she made if she went off of it, or are the improvements permanent? Every patient is different and this drug is brand new, so who knows. I think Amy has the right attitude; progress is progress. :-)
Jackie Mason | April 23, 2010
[hidden by author request]
Web Junkie
Steve West scours the Web searching for interest or absurdity and then shakes his head ruefully when he finds it. Read more »
It's Saturday And You Know What That Means...
Shopping Day. I went grocery shopping earlier today because I had the afternoon free and I prefer to get it done when I have the chance as opposed to shopping at night because that's the only time available after a full day's activity. Added bonus: no UOAS. Go »Who Edits Wikipedia?
Without trying to seem overly paranoid, I've always been just a little suspicious of Wikipedia entries since they can be easily manipulated. A student has created a program that tracks just who is making changes to Wikipedia; adding exaggerated claims or deleting sections with negative connotations. Go »Really Cheap Costumes
Looking for a great photo for a future Halloween section in that photo album you can show the grandkids? Just wear one of these T-shirts. And then get arrested. Go »Thorough Movie Reviews Revisited
Are you one of the group of people, like myself, who insist that they are not influenced by movie critics and make your film choices based on whim, fancy, instinct or some other method completely unrelated to some "professional's" opinion? Perhaps you should visit this website where you can rate (not review) movies yourself, and compare the result with a series of national reviewers to see whose opinion most closely matches yours. Maybe that particular reviewer deserves a second look since you two seem to be on similar movie viewing wavelengths. Go »Spain in a Week
We're back in the USA after a week in Spain with layovers in Paris and Amsterdam. Barcelona and Madrid were incredible. We saw more things than my brain could catalogue and looking at the pictures we took I find myself repeating, "Where in hell were we when I shot this?" Go »
Amy Austin | April 19, 2010
Sounds pretty good, if not promising. And hey... whatever the cause, progress is being made, right? And without any apparent side effect, too. This is good.